Save the baby.

I remember years ago a friend humorously being quoted as having said that her day, everyday, consists of making sure that "her boys don't die". I thought it so funny, I understood and respected the concept but only on a superficial level. Now I fully g r a s p the gravity, the deep dark truth of those words. Three days ago, I awoke and was amusingly surprised to see Lily happily sitting up in her crib, refreshed and bright-eyed after a good night's sleep, air conditioner remote control in hand. This morning I awoke to her happy babble and smiling face grinning at me in the dark, standing up excitedly, hands on the railing, eyes gleefully peering over. Jump, jump, jumping in place.
My daughter is mobile.
Months ago she was a skilled roller and even then I recognized that boundaries were in order; today, pillows against the console no longer do the trick. The days of her perched in full view on the bed - barricaded by pillows, entertained by animals and a shape sorter - are over. She established a game where she'd gradually climb the barrier every time I turned my back and giggled delightedly when I turned around and caught her in the act. It was our own version of Red Light Green Light. I know that when she's playing on the floor, while I prepare something in the kitchen, that three minutes of silence mean she's ventured into questionable territory. She can pull herself up, walk along side furniture, inch worm her way to toys and extension cords and enjoy a meal of postcard or board book. Often times Lily won't fold, she's on the go and is thoroughly enjoying her new found dexterity. She spent much of her afternoon nap today standing in her crib. I tried to minimize that fact by reminding myself that cows and horses sleep standing up. But the most daunting thing about all of this evolution before my very eyes is that it is time to empty the apartment. Move out the furniture, eliminate picture frames on shelves, barricade books, strap TVs to walls, pad the floors, latch the cabinets, lock the toilet, safeguard the oven, encapsulate power strips, fence the windows and on and on and on. The mission is well worth it but the endeavor is overwhelming. We have limited space as it is with a storage unit almost at capacity - what I would do for a walk in closet. One of my parenting books says that a cluttered apartment is good for a baby. It colors their world and is fodder for a curious mind - much more so than a minimalist environment.
I love that book.
But I love Lily more, and need to find that safe-happy-medium where she gets an eyeful without danger lurking. Apparently Alan said that the amount of money spent on storage could easily buy back any items you give away instead of storing. I love that man. But then how did he and I end up with an overflowing attic on 26th street? Perhaps it's time for it all to go to the curb. But that's no easy task for me, I am a sentimentalist and we both were nostalgic. So storage remains... But it's down to the details now. If he ever saw me wrapping presents on the floor he'd say "you can't leave the scissors there Sus when there's a baby" and when I'd forget something in the apartment as we were on our way out he'd dryly say "don't forget the baby Suuuus.." . Lily is impossible to forget. She is making her mark by the minute and she is precious. The innocence of babes is breathtaking and terrifying, they rely on you for everything and are far from grasping caution. That is what makes them so beautiful to watch, they embrace life without a care beyond the need of arms wrapped around them or carefully shadowing them as they explore the world. It is a unique phase, they are truly carefree. So while I worry and follow her every move, envisioning every disaster and tragedy imaginable, it is nice to know that in her eyes, everything around her represents nothing more than adventure and discovery,

Strength in numbers.

This morning Lily and I had brunch with my support group friends from Gilda's Club. There were two other babes there and I hope Lily will know them for years, as they will understand what it feels like to know a parent through love that is present in a different way. I don't want her to ever feel alone, or self conscious of growing up under unusual circumstance - undoubtedly she will at times but if she has a bond with other kids such as these, as I do with my support group, she'll know that she is understood, that there is a place for her among others who are similarly so very special. It is oddly amusing to imagine how we all look, gathered around a long table in a diner - to the passersby, the other diners, we look like a happy, colorful group of people - perhaps connected through work - at one dinner we had, the waiter asked what the occasion was. When one in our group laughingly said something to the effect of "the death of our spouses" luckily he was able to roll with it. But it is surreal to step back from the table and to take it all in. We joke, we laugh, we cry, we confide. It is the only group with whom I can truly feel comfortable socializing - and little do the people around us know, that we are all connected by the deepest sadness - immeasurable loss, longing, despair, and the daily struggles of trying to live as productive, hopeful people again. I can joke freely with them, our sense of humor is dark - and it feels OK to laugh with them. Because I know they know how I feel underneath the surface, I know they understand the ache, I know their minds are haunted with similar memories, I know their daily hurdles mirror mine. We have dreams, we don't have dreams, we get the continuous comments. Recently someone told me, again, I needed to "move on". Ugh. A friend trivialized a routine I share with my daughter as though it were as base as taking the trash out. Recently someone complimented one of my group friends on her idea to wear her and her husband's wedding rings around her neck on a chain. The woman commented, "I can never get my husband to wear his ring - that's such a great idea". You have to laugh. It's too awful to contemplate if you don't. This world is full of people who cannot think further than "what's for dinner tonight" so introspection or heightened sensitivity of any sort is hard to come by. But we all ride the waves, and see the world with a different pair of glasses these days.

It is interesting to watch Lily develop as she doesn't need the glasses. Her thoughts are pure, she is open and loving to all that is around her. She takes it all in with no judgement, just delighted curiosity. Yesterday she gave me a round wooden circle. And later she gave me her spoon. She is beginning to grasp the idea of sharing. She has found another way to communicate. Lily is rarely still, the changing pad might as well be a hot plate, I am now struggling to change diapers as she attempts to crawl across the dresser. She was thrilled to be in a highchair next to another baby this morning, they held hands, Lily grabbed at her as they spoke with squeals. Gentle isn't part of her vocabulary yet, but it is refreshing and beautiful to see unfettered emotion, rooted only in the feeling that something, or someone, makes you happy.

My Lighthouse.

Lily is eight months today. She changes hourly so my arrival home from work cannot come soon enough. Thankfully she called me yesterday afternoon, to pull me through the rest of the day. She panted, screeched and giggled - I could just see her happy drool, squinted eyes and crinkled nose. I could picture her attempt to chew on the phone. She is amusingly animated and though she has no vocabulary, yet, she is an exuberant, loud, communicator. As difficult as it has been to miss her during the days, she is the most wonderful little person, truly my guiding light - and it is she that makes time away that much more rewarding when I'm home. Nearly crawling, she takes pleasure in banging objects together, enjoys dropping things from elevated levels, is charmingly vain in front of a mirror and possesses an overall happy spirit. She was sick for the first time last week with a fever that has since grown into a cold and despite her congestion she is energetic and excited by all that surrounds her. I suspect that she caught her bug from Barnes & Noble - a wonderful indoor playground but a petri dish as well. We went there on a rainy weekend and stalked other children. Lily does love a good board book but she is drawn to other kids and cannot contain herself at the sight of another child. She is an extrovert around children under seven, curious, chatty and engaging. So instead of reading "Go Dog Go" she chose to hit on a Cheerio eating boy named Max near the SAT prep books. She also shook hands with two young boys and had a staring contest with a girl who said she was two, three, four years old. It was a grand social hour, and I guess we brought some of it home with us. Hopefully her congestion will dissipate, enough so that she need not come up gasping for air after every four gulps while nursing. Poor thing needs a snorkle. Maybe tomorrow will be a dryer day. Regardless, her disposition remains sunny.

Alan said to me at our wedding that I carried him, through the days, and as I struggle to adjust to this step back into the working world it is Lily that carries me. Holding her in my arms has almost curative powers. When she gently contemplates the rings that dangle from a necklace that Alan gave to me, I sense that she is aware of him - there is a peacefulness that comes over her as she examines them and with that, what feels like his awareness of us, washes over me.

Search for a cure.

I actually read the front page of the paper today, drawn to it because of an article on MD Anderson - a mecca of sorts for cancer patients. Part of me was excited to read it, to learn of it's hopeful research and treatment, and part of me was fearful I'd learn of something experimental for hemangiopericytoma's that we had missed out on. In our research we heard mention of MD Anderson when we pressed for places that might have something experimental that was promising and while we wanted no one else to be plagued with the same disease, when it comes to a rare cancer, misery loves company - only for the simple reason that with disease, numbers mean funding and research. We knew MD Anderson had multiple cases of hemangiopericytoma (He - man - geo - peri - cy - toma) and that alone made it an alluring destination for a fresh set of eyes and ideas. But it wasn't an option. We had phoned them, I had a list of all of the reports and scans needed, but you cannot go unless you're a certain number of months between treatments and you cannot go while on any sort of regimen. The most excruciating aspect of the actual fight against cancer is the obvious: Time. And when you're fighting for your life, the thought of refusing treatment in order to attempt something else further down the line is a gamble with death. Pure and simple. I had spoken to the NIH, had information on trials, we went to Dana Farber in Boston for an opinion and MD Anderson was on my wish-list. Forget about the question of what you'll do about work, where you'll live or how you'll go back and forth to Houston, the concept of what might be there was worth it. The article was inspiring because it's entirely devoted to all things cancer, and they are at the forefront of critical research. It was also devastating because it acknowledges that there is yet no cure and positive results often mean extending one's life by months.

I was desperate to find a cure for Alan's illness. I would have gone to the ends of the earth to stop it's progression. And that is another struggle - you become obsessed with research and the quest for an answer and it occupies every sleeping and waking moment. Just the other day I used a purse I hadn't used in over a year and on a piece of scrap paper inside, was the name of a drug. Obviously I had read about it somewhere and written it down - the kind of note taking that becomes second nature when you're searching for any port in storm. When I came across it for a moment I worried I had neglected to look it up, to find out about it's potential for Alan - but I let it go, trusting that had it been an option, it would have been explored. Whether Alan would have benefited in Texas or not, I'll never know. Thankfully, what I do know, is that doctors talk. They exchange notes, share findings, and gather at conferences - Alan had excellent doctors thinking out of the box so I have to rest assured that no stone went unturned. We ended up at MSK because we were told that there was technology there that he needed that Columbia Presbyterian did not yet have. It took a selfless doctor to admit that, but thankfully, he did. Sadly bureaucracy and funding can limit even the finest hospitals.

I remember Alan cracking a joke during a visit to the radiation oncologist, having to do with Ted Kennedy being able to sail and live largely while top doctors scrambled to provide him with ground-breaking therapies. As it happened, they both ended up on the same chemo, and the Senator's prognosis (though a different tumor) wasn't any gentler. But it is exhausting navigating an uneven and poorly run health care system, insulting to consider that money or lack thereof could influence the length of one's life, and bottom-line, unfair. Health care is discriminating and Alan had strong opinions about it. He was furious at one point when we decided to move him to a private room because the nursing care was so poor on his floor - he felt it was unfair that he had that option. And yet he also felt it was fair for doctors and hospitals to charge what they did - the system had to pay for itself. But even with excellent insurance, Alan was cheated many times. He was repeatedly denied scans when he desperately needed them, hospital stays had to be fought for and when he did get scans the angst that went into getting them approved added insult to injury. Most of the time I was the one showing desperation, not Alan. He was the one with the sentence but it was I who openly and frantically sought the answers. He showed up to every treatment, surgery, scan and follow-up, he went to work and came home and loved and lived and did it all over the next day. That's the most admirable fight I can think of. So when I read of the patient who has shown up for sixteen, week-long stays within a nine month period, on the front page, my heart is glad she's getting some recognition from others beside her family and friends. And I hope she has years ahead of her.

Moving Forward.

I am going back to work. For the first time in over a year, I'll be rejoining the masses heading to a daily destination, and leaving Lily at home in the hands of a doting grandmother and a nanny who loves her. Despite the watchful eyes on Lily I miss her already and have my own set of anxieties surrounding my return to the position I held for many years until Alan passed away. It will be the same room, same desk, and I will be facing the same photo from our wedding of Alan and me together with my employers, arm in arm, on the happiest day of my life. I know from the occasional part-time days I worked during my pregnancy that the phone will ring and I'll jump inside, thinking for a split second that it's Alan on the other end. My Alan. That was the routine - my employers are also Susan and Alan - so when my Alan called and I couldn't get to the phone in time, my employer would. And I can just hear her calling me from the other room, "It's Alan! Your Alan...". I can hear his deep, rich, soft voice in my mind, "Hi Sus" he'd say, and then he'd maybe suggest getting theater tickets for a show we'd read about, or fill me in on his office's politics or have an idea about where we could meet for drinks or dinner after work. Or perhaps he was planning on cooking that night or he'd fill me in on a doctors appointment. Sometimes it was just to check in. How I miss his reassuring voice and his level headed perspective, his calm balance to my dramatic inclinations. His warmth always brought a smile to my face and my employer never missed telling me that he had called if I had been out. She knew how important he was to me, and there were also many hours spent, waiting to hear back from him if he'd gone to treatment without me. I was, and still am, a worrier, so if too much time lapsed between appointments or calls my heart would race until I heard from him. And there were plenty of calls when I could hear in his voice that something wasn't right - a headache too strong, a dizziness, or a sharp pain - and though he'd play it down, I'd rush home, knowing that in a few hours most likely we'd be in the ER. It wasn't a regular occurrence, but each and every visit was one too many.

I'm getting better at catching myself in those brief moments - whether it's a phone ringing or a silhouette in a window. But the fantasy still remains. Just yesterday I had a daydream where I envisioned telling my Super that Alan was back. Explaining to him that there had been some mistake and that Alan was still here, and he had returned, and he too agreed that there was something wrong with the radiator. It was a fleeting thought, but a wish that resonates. The heat is now back on, with the usual photos of Alan and us arranged lovingly on top.

A woman I spoke to one early morning at the swings said she thought it was harder for the mom who's been with her child for seven or eight months to return to work, than for the mom who's time is up at the typical three months - the thought being that at the seven month mark you've been watching your baby develop and discover and grow in tangible ways. They're well beyond the baby "lump stage" and are evolving before your eyes - so the child you must now leave seems more human, and the connection deeper. And I understand that thought - because every day Lily is closer to crawling, her balance is less off kilter, her mannerisms more calculating. She is waving, feeding herself little Os, chugging from a sippy cup, and connecting mental dots. She knows that cups hold water, Spot isn't in the closet or under the bed - he's in the basket, that people come through the door, that music is fun to move to. She talks to her animals and knows that when she makes noise, she is heard. I find that when I'm not with her and I hear a baby cry, for a second it sounds like Lily. Once again someone is on my mind 24/7, and I'll have to go for hours without seeing her. Most moms do it, and I'm sure - I know - it's no easier for them. Makes me long for Italian hours - long lunches at home and siesta. How nice that would be. But I know I'll handle it, Lily makes everything worthwhile - and when I sit down at my desk next week I'll place her photo right next to the others and look forward to our twilight hour together, before she goes down to bed.

Fall.

The new year has come and gone and I did nothing for it besides consume an entire cinnamon babka (over the course of a few days). I am not a religious person, nor was Alan - I think we both considered ourselves spiritual but not observant. Respectful of history and culture but that was the extent of our feelings. In fact I remember Alan saying one year that he had nothing to be forgiven for - and he didn't. He was the consummate good person. Flawless, no, but a genuinely fine human being - so as he gracefully handled the constant challenges to his body and spirit, I understood his attitude. As a friend said to me at one point, "it's someone else's turn". And it was. Disease does not discriminate, and when you face such unrelenting onslaught - faith feels pointless and it's promise, dishonest. Alan would say at times that he felt like he was walking into the wind and this month, for me, felt like that as well. A month that at one time celebrated the moment when we first met, and later our wedding, now marks anniversaries we cannot commemorate - so I am happy when certain dates come and go. Every day I reflect on what we had, and thank Alan for Lily, our most beautiful memento. But the grief continues and September felt particularly cruel. The seasons are changing and that means time passing. Time passing without him.

But I know Alan has been looking after us. Over the past few months he has graced us with whispers and music and signs. One day Lily and I watched as a young tattooed dad sat on our bench and played the guitar to his baby girl. Some mornings Lily and I, from our bench, have seen a woman jog by with a T-shirt saying "I (sign) A.R.". In California when I told someone my baby's name was Lily she smiled and said "Oh, that's my name". I said "Oh you're Lily?", she replied, "No, Susan. Its Hebrew translation is Lily." I looked it up and sure enough, it is. Alan chose her name and perhaps he wasn't aware of the connection - but to me it is fatefully serendipitous. And the other day when I was on hold, having a particularly low moment, on came "Midnight Train to Georgia". Many, many afternoons I sat alongside Alan on the bed as he played it on the guitar and cued me in on back-up vocals. It was his one request at our wedding - and oh how he smiled as he sang it with our friends, all crowded behind mics shared with the band. When he was happy I was over the moon, because Alan deserved to let go and relish in unfettered joy. Seeing that was beautiful. Tonight I playfully argued with him over Mardi-Gras beads Lily was chewing on. They typically hang over a portrait he made of his beloved Bulldog, Duncan, and Lily has taken to patting Duncan's photo and going for the beads. I cherish the moment while I worry about plastic, peeling, paint-coated beads made in toxic places. Alan whispered, "Oh Snooze, let her have 'em." We compromised. She gets a few chews and hums, and then they are gently pried from her grip and lovingly returned to Duncan's shrine. And then we tell Duncan to lick Alan for us and tell him we love him and think of him all the time. All the time.

Shhhhhhh...

I have never written this early in the day but as it happens, my DAUGHTER IS NAPPING IN HER CRIB. So I have some "extra" time. It is miraculous, and comes on the heel of yesterday's nap of epic proportions lasting 2 and a half hours. I was concerned that Lily might feel after yesterday's feat that she had rollover minutes to apply for the next couple of months. Miraculously, she is commanding a repeat performance. I am currently celebrating by eating breakfast. Not only that, I am eating my breakfast in s l o w m o t i o n. One skill that comes quickly to new moms is the ability to "shove it in" - eating at lightening speed. Yes, unglamorous sounding, but when you are constantly preventing your child from grabbing spoons, shredding menus, chewing table edges, sucking napkins and consoling back-arching restless babes there is no rest, nor time for leisurely meals. Eggs and toast. And tea. I even browsed a couple of catalogs. I feel rested just knowing Lily is asleep. Must now pay bills, find work (out of the home, that is), do filing, laundry, and write thank-you notes. But can't do laundry, can't go through room to get it. Baby sleeping. Can't file, drawers in same room. Baby sleeping. Can't shower, bathroom connected to bedroom. Baby sleeping. Will do when she awakens, bright-eyed and smiling. Mom's are experts at the two-minute shower and getting out the door quickly. Mama minutes are equivalent to dog-years - a quarter of an hour equals at least two hours in real time. Amazing what one can do in an hour... when there is hands-free peace and quiet.

Squa, squa, squa, SQUARE!

Currently Lily is often drunk with sleep deprivation but she wears it well. She continues to giggle, stagger as she stands, sit up with impressive posture, bang on the piano with her foot, lounge comfortably in the stroller, legs lazily draped over the bar and eat mashed food artfully. I on the other hand teeter between anxiety and amusement, exhaustion and loneliness, and fantasize about naps, showers and going to a movie. I ran into an acquaintance the other day, in a moment when I could hardly keep the tears at bay. It had been a difficult week and that morning I was particularly tapped - I was caught off-guard, twice, by two different songs, one at home and one in a restaurant. They played out of nowhere and left me raw and exposed. One minute I'm eating lunch, the next, subtly and self-consciously brushing tears from my face, feeling more and more isolated by the journey I've been on. The world rushes by, the tears go unnoticed. At times I cannot bear to let the emotion take me any further, the pain is almost paralyzing. Thankfully if I focus on Lily, waiting for me at home, I can pull myself out of the despair. "Yummy, yummy, yummy, I've got apples in my tummy!" Within seconds I'm back in the land of the living, singing over and over and O V E R again a line from one of her robotically cheery toys - that she activates unwittingly every few seconds to the extent that it stutters. Yummy, yummy - Yum - Yummy yu - Yummy yummy I've got... frequently we never get through the whole line, and it doesn't phase her in the least. I on the other hand am on the verge of mama-insanity and then all of a sudden "Sq, sq, SQUARE! I'm a blue, I'm a blue square!".
My day continues.
Ahhh... Motherhood.
I recently realized I neglected to rinse the conditioner out of my hair, a friend told me she discovered her shirt was on inside out after picking up her child who's shirt was on backwards, and another is struggling with memory lapses and frequently repeats parenting anecdotes. The other night I was pumping (breast milk that is) only to discover that the delayed feeling of warmth on my leg was the bottle overflowing. I cleaned it up only to find myself, minutes later sitting on the wet cloth I had used to clean the milk off the sofa. At times I find myself laughing so hard the tears start flowing. Those are good tears. Delirious, belly shaking laughter and tears that I know Alan would find amusing. We often laughed together and he loved my sometimes silent, bowled over hysterics which in turn, had him panting with glee. Lily has her own laughing pant and it too can be silent - Like mother like father like daughter. Luckily for me the dark moments are balanced with levity that is whimsical and mind numbing, heart warming and life-affirming.

Sleep Baby Sleep.

There is nothing better, as an exhausted parent, than feeling a baby slumped on your shoulder, heavy with sleep. There is certainly beauty and joy that comes with holding a baby in your arms, hearing their babble, and feeling them kiss your cheek which, as of now, consists of a large open mouth that drools and energetically clenches your cheekbone with glee - but when you're feeling especially sleep deprived and desperate for some sense of reliable schedule, nothing beats the peacefulness that accompanies their rest. Since our voyage out West, Lily has fallen into a mercurial sleep pattern, which succinctly can be described as having no pattern at all. Or regularity. I texted a friend the other day who was also trying to get his babe to sleep and asked if nine minutes counted as a nap. "Yes" he replied, "if you're a hummingbird". Sadly, and happily, Lily is not. Days later, just when I think we're back in stride she's willful in her determination not to sleep or fitful as she does. As a parent, it is a test. Of sanity, and will. It feels like quicksand, laden with fears that out of desperation your "dynamic, soon-to-be self-sufficient" infant will become your bed partner for life, eternally parked at the milk truck, or spread out comfortably next to you, hand grazing some part of your body that you now cannot move. Last night I armed myself with a bottle of wine and a pound cake, prepared to indulge as I let the newest love of my life cry it out in the other room with my set limit of 20 - 40 minutes depending on my inner strength of the moment. It is torture hearing your baby scream, during which feelings of guilt, and fears of forever scarring your child take hold. You try to rationalize soothing them in order to help them form healthy relationships further down the line, or take comfort in the idea that leaving them distraught helps shape them into self-sufficient beings. Both options seem unacceptable, and sometimes coming in briefly to quietly calm them results in a burp worthy of a bar stool or calms them enough to help them get back to sleep on their own. If you do not go in, you envision them stuck in a position they cannot get out of, hyperventilating with sobs, or terrified, waking from a nightmare. Last night I ended up with a five minute interruption and the rest of the evening was golden.
I still had the wine and pound cake.
Earlier this evening armed with yet another backup plan I found myself walking around the apartment during twilight hours with a small bunny between my breasts, yes, a bunny - in my bra, hoping that my scent would rub off on Lily's friend to help ease her into sleep. As it happens, so far this evening the bunny, Bunny, has not been called to duty but he is in the crib with her, on deck if need be.

I need to work on my lullabies but I do remember a Simpsons episode where "Rock-a-bye Baby" was illustrated and the lyrics paint images that are anything but soothing - a bough breaks, the cradle falls, down comes baby.
Maybe not.
While Lily has her pre-bed aperitif I often find myself - beyond tired - nodding off, and in between nods I tell her how her dad was an enthusiastic nap taker. She needs convincing. But today was a long one for her that began with music class and ended with some dreamy Aretha in our room now evocatively lit like a bordello. So I am hoping, praying, that all of the activity will keep her deeply asleep throughout the night. Deeply asleep, deeply asleep.

Under Water.

It is surreal to be preparing baby food for breakfast in the kitchen, hearing Lily's playful noises in the background, while simultaneously contemplating Alan's final days in hospice. I often find myself in absolute disbelief over what has happened. One moment I'm marveling at a photo from our honeymoon, wondering if it all had just been a dream - a distant memory that maybe never happened, and the next moment I'm replaying detailed medical procedures and conversations while stark images crowd my mind. I am lonely in a way that I suspect I will always be, and I often find myself floating through days viewing the world through Lily's eyes only. Much of the world I don't care to see. A widowed friend asked me the other day if I had seen an article about cancer drugs and the inability of pharmaceutical companies to do anything but prolong a life by mere days and I could only reply that yes, I had seen the headline, but had had no interest in reading the article. And that is how I have been for months, detached from most things that reflect sadness, inefficiency, faltering policies. I have no room for it in my heart, nor my mind, and when I must engage in conversation that encompasses subjects such as those, I do, but I check out. I switch to autopilot, I can't even say I'm conscious of what comes out - and I'm not sure where what I do say, comes from. And being unemployed as a single parent has left me with little outside stimulation. Traveling was good, it put me in social situations, I even got to an aquarium, but I still feel as though I'm in a haze and I wonder if the fog will ever lift.

My routine is built around Lily and I now find joy, as she does, in the simplest pleasures whether it's making funny noises, dancing or reading a board book. Sometimes I wonder halfheartedly if my brain is shrinking - but my other mom friends assure me that their worlds too, are currently "limited in scope". Much of it is a welcome distraction, and while it is daunting to have the responsibility of raising a child, for the time being (knock wood) three minute showers, five minute meals, and meditating on a blade of grass suit me just fine. I find humor in the mundane - the way Lily looks when she takes a sip of water is a mix of confusion, suspicion and near disgust. When I pick her up at night to comfort her, it is she that is now patting my back. I delight in her spontaneous screeches and bouts of surprise panting excitement, and she bowls me over with X-ray stares that hold my undivided attention. I love to watch her lean out of the stroller, watching shadows and the wheels as they cover ground, and I envy the ease with which she relaxes - legs kicked up on the stroller bar, one flopped over the side. Thankfully when she's nursing just as my thoughts begin traveling to the darker corners of my mind, I spot potato behind her ears and then flecks of it in her eyebrows. Lily brings me back to a safer place, and though she is the one in my arms, I feel as though I am in hers.

The Firsts.

Lily is now six months old and with that milestone has come a slew of "firsts". She just took her first flights to the West Coast, she has begun sitting up (with the occasional sway, sag and plunge), she says mamamamamama, and dadada, she can expertly put her left foot in her mouth and the other day just as I picked up a bottle of Alan's preferred red wine she clapped. With every first it's incredible - they're moments that mark the culmination of weeks of attempts; erratic hand movements, elusive feet, and sounds without such specificity. I was truly overjoyed when she clapped, as I do it frequently when we listen to music and she has studied the movement intently for over a month but only observed. Occasionally I'd see her hands flex open and closed as she watched me do it but that was it. You can see the wheels turning when she fixates on something, so to see the final connection made was awesome. I was ecstatic and with that came the moment that I always dreamt about - being able to share it with Alan. Thankfully I was able to share it with family and a close friend who I knew would appreciate it but I became one of those mothers that wanted to show every passerby Lily's feat, and the ache of not having Alan to witness it made coming home to New York that much harder. She is truly developing into a little person - she is full of smiles and happy screeches, she kicks her legs with excitement over everything from seeing a dog to her reflection in the mirror. Her once peaceful nights have turned into teenage revolts and I am hoping, praying that that is a travel adjustment, but in this respect I could really use Alan. Parenting is hard. It requires infinite patience, resolve, hope, energy and a strong lower back. I miss Alan when I am exhausted at night, calming a wakeful Lily at 2am. I miss him when she cries for me when I leave the room for a moment - a new development which I hope will be short lived, I miss him when she hums with satisfaction contemplating a spoonful of food, I long for him when I see her smiling face peering at me from the crib at 5am. I hope he can see her delight as she peers at herself in the little mirror on her Excersaucer, that he can hear her squealed greetings when I hand her her piggy or her monkey chimp, that he can see her twirl her wrist with spoon in hand and then listlessly let it drop to the floor with her eyes on me as she does so. She is now connecting with objects and people - her discoveries are beautiful to watch. She acts with intention. I have seen her come out of a nightmare, and I recently heard a giggle as she slept. And she is ticklish.

One of the nicest things about traveling and staying with others was that I could show them Lily sleeping every night, I could share my obsession with my girl and they'd dote on her as well. They could see Lily in moments that only Alan would have experienced with us - late night sighs and her sweet sleeping silhouette, active early mornings and animated bath times. It is a joy for me to be with others who can appreciate such moments even if their enthusiasm is merely meant as support for me ~ It is love all the same. Coming home was difficult. Having our trip to look forward to was a comfort, returning to our home so wishing that Alan would be here to greet us was a challenge. He would have been so proud of our journey together. I dreamt about him the other night, the three of us in bed together, Lily in the middle. As I took Lily along side of me when she awoke shortly after, I whispered to her that in my dream we had been a family. But then I corrected myself because I know deep down that we have just enough and whispered again, that the two of us were a family as well - and feeling her sleeping next to me, I know it to be true .

My Girl.

Lily and I are on our first adventure together. We are on the West Coast visiting family and friends and with every hour I feel more and more as though she were an extension of me, I feel so deeply connected to her. She is a very special, unique being and as I ease into parenthood I find that my new role, my purpose in life is to be her mother, her roots, her rock - I now fully understand the concept of guardian. The responsibility of being a parent is awesome, and with that come the fears, worries and even more vulnerability. I found myself on the way to the airport emailing my brother with last minute wishes for Lily should something happen to me. Neurotic I know, but I have already lost the person most precious to me in my entire life - so the thought of this beautiful piece of my heart, our hearts, without either one of us, is haunting. Even when I just need someone to watch her I know the general thought is "come on, she's safe, she'll be fine, worst thing that will happen is that she'll get upset and cry" but that's not the worst thing - I have lived through one of "the worst things" so I know that it does happen, hence my fears loom large. Experiencing separation from Lily whether it be with a relative or babysitter is a tremendous challenge and while factors such as trust and safety are of the utmost importance, the anxiety stems from something much deeper - she is mine, and I am hers and our mother-child bond feels primal. So for me, boarding a plane with her in my arms feels much greater than a taxi ride, and leaving her with someone else is an emotional test of almost herculean proportions.

For months after Alan passed away, before she was born, and now the months after, I've struggled with my identity. I read often on one of the widow "boards" about how people have lost their sense of self upon losing their partner and I too, feel as though the "old me" is forever gone. When I lost Alan, I felt as though much of me went with him ~ and I know he'd hate to hear that, to witness it, but when you are so entwined with another soul - regardless of your independence - the loss kills much of the spirit within; death deadens. It numbs. It leaves you feeling disoriented and I too mourn my loss of self. Thankfully, Lily has given me purpose, and it is her spirit that has begun to bring me back to life. Despite the fact that we're together nearly everyday, I have gotten to know her even better as my travelling companion. The flight attendants could learn much from her - she is patient, full of smiles, is nice to everyone and her obliviousness to unpleasantness around her is admirable. Her glee is infectious and more and more she embraces unfamiliar faces with an openness that dissipates with age. Lily is a sponge and absorbs everything around her. She entertains herself with lights, TVs, music and sounds. She is fascinated by older children, she squeals when dogs brush along side of us. She turns her face into the breeze, she grabs at leaves, she splashes in the tub with reckless abandon. For all of the sadness I have inside, I now have equal parts happiness. The way she brightens my life is staggering, and I am OK with being Lily's mom while I try to grasp at parts of me that have seemingly faded. Like other widows and widowers, I still care little for reading the paper and watching the news; events that once triggered emotive responses still don't move me, there is much I no longer care about. But as we make the rounds out West, reconnecting with family and friends and introducing her to many who have, until now, loved her from afar, I feel as though despite my ungrounded sense of self, she has proven to be my new anchor. So as we forge ahead together, Lily's life new with every morning and mine exploring unchartered territory I am grateful to have her by my side and am glad for her that she has me to dote on her and to love her with all of my heart.

Coney Island

Some of the last photos that Alan took were of Coney Island. It was a bright, dry day in January, the streets were quiet but the signage and lights managed to evoke the summer soundtrack of rides, eighties music, screams, laughs and barkers. Coney Island is particularly special in the off-season - its lore is easier to imagine, the trash is limp in the gutter, its peacefulness enhanced by the empty beaches, its lonely streets asleep except for the occasional passerby. He did manage to capture a man surreptitiously rounding a corner with a large bag from Nathan's, I have a feeling Alan headed there shortly after. He loved Coney Island and I can just see and hear him driving out there on a winter day - perhaps he had had the day off for appointments, I don't remember him going - but I can picture him getting into our hand-me-down car, talk radio or classic rock on, sunflower seeds in one hand, a Dr. Pepper in the other. He was always the one behind the wheel and I got a kick out of Alan driving because it was one of the rare instances (aside from Yankee games) in which his "Brooklyn-ness" came out - he swore at other drivers, a hint of an accent coming out and he could get really pissed when others got in the way. I have to say it gave me a bit of a thrill - my gentle man, yelling unpleasantries at poor old ladies and having no patience for out of town drivers. It gave me such a laugh, he was sheer entertainment and it was a great surprise to see sides of Alan that only came out on occasion. I'm not sure he knew how people sometimes waited with curiousity or baited breath to hear what he had to say and when what came out was some rude "Come Onnnnnnn..... jackass...." it was hilarious, it was scary, it would actually shut me up on occasion. I loved it. I love him. Always.

It was startling finding the photos on his camera, again, something I hadn't known - or maybe I did and I forgot. Regardless, "after-the-fact" mementos are gifts; haunting at times, but a gift - to see the world through his eyes. The DVR still records some of his shows - American Masters, Iconoclasts, 30 Rock, The Office and I can't cancel them. I watch some and erase what I know he wouldn't want. But it is hard. It is such a comfort to see his actions continue.

Last weekend Lily and I went with friends to Coney Island. The first time we went was on Alan's anniversary, so she is a vet now. It was a steamy warm day full of crowds, hotdogs and trash. And it was wonderful. Lily took in the sights and sounds and smells - everything new to her eyes and yet so familiar to Alan's. My friends asked if I wanted to go on The Cyclone and I declined. The last time I rode it it was springtime and Alan was in the hospital. He had urged me to go on a bachelorette party excursion for a dear friend - Alan hated feeling as though he was ever holding me back and yet it was torture for me to ever leave him. I went, rode the roller-coaster and that decision too was difficult. My worries and "what ifs" were taking over at that point and my fear of something going wrong on the ride with Alan where he was, were a force to be reckoned with. I went on it, a three minute electrifying distraction, but that was the last time. This time around I have a giggling 14.5 lb love that replaces my worries of last year - and as neurotic as it sounds, I am her only parent. And I experience that often, decisions feel weightier, responsibilities more daunting without a co-pilot to confer with, to share my concerns. What I would give to be able to go out for an evening with Alan and we could ask each other every ten minutes if we thought Lily was OK. Alan would say "What do you think she's doing?" and we'd both want to go home to look at her, watch her while she sleeps. So this time at The Cyclone I declined. When Lily Alan wants to go on it she can - and I'll look on from the sidelines, a nervous wreck, praying that Alan's got her in his sights.

We Have A Bench.

Lily is asleep tonight in her dress, we are both exhausted, worn out with love. A day that began with a text to my friend Sam saying "It's so humid out it smells like Venice" became a day revitalized with something I can only inadequately describe as "an expression of immeasurable affection". Friends and family of those who have touched our lives over many, many story filled years, contributed funds to have a bench in Riverside Park dedicated to Alan. It is breathtaking, it is perfect, it describes Alan succinctly (which he would appreciate) in a few precious lines that capture his character and soul so vividly it is as though he's been sitting there all along. Being there in the park, Lily held tightly against my heart, with intermittent showers clearing the air, hearing the patter of the drops on the trees, amid the mist and the heat and our extended family, it felt as though Alan had his arms around all of us. Despite the summer's stormy weather there was an ease and serenity that embodied those who were there, laughs and smiles and tears, new babes who will hear about Alan for years to come and new lives on the way as well. He must have been watching.

There is rarely a day that goes by that Lily and I aren't in the park. She loves the bucket swings and dances with her legs as she floats through the air, trapeze like, smiling with glee at me or else eyes fixed intently on the older kids that occupy the swings around her. She loves the trees, their silhouettes against the sky, and often we park on the grass for stories, songs and nature watching. And now we have a bench, with her dad's name, and my love's name, forever etched on it for all to see. We will go there whenever we can, we will read its words, we'll sit there and watch the world go by. And if others are sitting in our place we'll relish in our secret, knowing that the name they're leaning on will surely guide them in some positive way. This is a bench like no other, a spot brought to life by the memory of someone that continues to thrive and by those who contributed to the richness of his life with their friendship, love and devotion. So much love an affection in fact that there will soon be a tree planted in his honor as well ~ so we will go there too, and watch it grow along side Lily. And when it passes her in height we'll lie underneath it and marvel at Alan's strength in it's outstretched branches.

Beyond Words.

One of my favorite diversions once Lily, my greatest diversion, is down for the night is a show called "So You Think You Can Dance". And last night I felt as though my experiences with Alan were portrayed with a beauty that left me weeping. I have always loved dance and it has forever been my "if you could come back as anything what would it be?" choice. There is something so deeply felt when you allow your emotions to guide your movement - it offers vocabulary that is unavailable in any language, it is simultaneously liberating and desperate and cathartic. When I saw this pair move through their piece I felt as though it perfectly articulated something I have been fortunate enough to survive, each gesture says it all. I have replayed it numerous times, it is validating and comforting beyond words. If you look up "So You Think You Can Dance and Breast Cancer" you may still find it on You Tube. It is worth the search.